TPWS
Nawabshah, Sindh
Learn about Performance and unwavering commitment to a better future for Thalassemia patients and the community.
The medic & paramedical staff put their utmost efforts that indulge innocent Thalassaemia patients and their parents in routine. Approximately one hundred fifty patients checked-up on daily basis. If we sum-up the figure yearly approximately 25744 patients checked-up in 2024.
After getting vitals at OPD section, patients recommended for blood transfusion according to their deficient hemoglobin requirement. Hundred plus patients need blood transfusion. Before transfusion, all blood samples which were firstly got through rapid kit at the time of collection then screened again on Electro chemiluminescence Immunoassay (ECLIA) machine, as per WHO standards.
TPW Society having team consists on 1 x Field Manager Blood Donation Camp and 5 x medic staff always ready to move to field for arrangement of blood through blood donation camps. Except Ramzan Kareem, this team organizes the camps 24/7 throughout the year from all over the Sindh. During the Year 2024 approximately 15420 received blood through blood donation camps.
There are more than 295 camps were arranged to aware general public about Thalassaemia in 2023-24. Colleges, universities villages and different public forums were visited for aware the consequences of Thalassaemia disease and how to prevent spread of such disease.
Some of the pockets of different areas of SBA division, where frequent cases have been reported, which are affected from Thalassaemia Major Disease. Therefore, it was planned that each of the resident of that village/pocket get tested through HB electrophoresis for diagnosing that either that individual is Thalassaemia Minor or normal. After screening all males/females those, who observed as Thalassaemia Minor have been informed that should not get married with Thalassaemia Minor Females and vise-versa.
It is very fortunate that some of the medic of TPW Society have obtained the training on CVS procedure from well-known Institute of Blood Disease. Approximately one hundred fifty procedures have been finalized in last quarter and same, forwarded to Karachi for further diagnosis.
Explore verifiable clinical and operational data across years, district demographics, CVS diagnostic outcomes, and electrophoresis screenings.
| S.No | Detail | Year 2023 | Year 2024 | Trend |
|---|---|---|---|---|
| 1 | Blood Camps | 215 | 295 | +37.2% |
| 2 | Blood Received in Camps | 14,208 | 13,615 | Stable |
| 3 | Blood Received in Centre | 2,180 | 1,835 | Centre Inflow |
| 4 | Total Blood Received | 16,388 | 15,420 | 15.4k Units |
| 5 | Patients OPD | 27,206 | 25,744 | 25.7k OPD |
| 6 | Blood Transfused Thalassaemia Major Patients in centre | 19,486 | 18,720 | 18.7k Transf. |
| 7 | New Registration Thalassaemia Patients | 123 | 125 | +1.6% |
| 8 | Total Thalassaemia Major Patients Registered | 2,493 | 2,618 | +5.0% |
| 9 | New Haemophilia Patients Registered | 3 | 2 | New Care |
| 10 | Total Haemophilia Patients Registered | 103 | 105 | Cumulative |
| 11 | CVS Test Performed | 326 | 288 | Prenatal |
| Indicator | Share (%) | Operational Impact |
|---|---|---|
| Patients OPD | 43% | 25,744 Outpatient consultations rendered in 2024 |
| Blood Transfused Thalassaemia Major Patients | 31% | 18,720 Transfusion sessions delivered at centre |
| Blood Received | 26% | 15,420 Screened donor units through camps & center |
The ratio demonstrates a robust operational balance where over 43% of activities center on thorough outpatient diagnostic evaluations, transitioning into 31% life-saving transfusion administration with 100% ECLIA screened blood supply support (26%).
| # | District Name | No of Patients | Regional Share |
|---|---|---|---|
| 1 |
Shaheed Benazirabad
Top #1
|
1,083 | 41.7% |
| 2 |
Naushahro Feroze
Top #2
|
631 | 24.3% |
| 3 | Sanghar | 357 | 13.8% |
| 4 | Dadu | 228 | 8.8% |
| 5 | Khairpur | 123 | 4.7% |
| 6 | Matiyari | 68 | 2.6% |
| 7 | Jamshoro | 57 | 2.2% |
| 8 | Hyderabad | 18 | 0.7% |
| 9 | Larkana | 12 | 0.5% |
| 10 | Mirpurkhas | 11 | 0.4% |
| 11 | Sukkur | 8 | 0.3% |
"Chorionic Villus Sampling (CVS) is a prenatal test used to diagnose thalassaemia in the fetus, typically performed between 11 and 14 weeks of pregnancy. It involves taking a small sample of tissue from the placenta, which is then analyzed to check for genetic abnormalities, including thalassaemia. This test can determine if the fetus is a carrier, unaffected, or affected with thalassaemia major. Specifically for mothers of thalassaemic children, the centre provides this service with: Prenatal diagnosis, Family planning, Better health outcomes."
| Major | Minor | Normal | Abortion Done | Abortion Refusal | Total |
|---|---|---|---|---|---|
| 67 (23%) | 198 (69%) | 23 (8%) | 65 | 2 (Due to in-laws Pressure) | 288 |
"Thalassaemia Patients Welfare Society Nawabshah. This Centre provides free-of-cost screening and prevention services for thalassaemia disorders in all districts of Sindh, including Universities, Colleges, Institutes, Schools, Villages, and General Populations."
| Category / Test Result | Count | Percentage | Clinical Action |
|---|---|---|---|
| NORMAL | 5,916 | 82% | Clear clearance issued |
| THALASSAEMIA MINOR | 905 | 12% | Pre-marital counseling & warning against Minor-Minor marriage |
| IRON DEFICIENCY ANEMIA | 372 | 5% | Dietary counseling & iron supplements |
| HAEMOGLOBIN D.TRAIT | 43 | 1% | Documented carrier trait |
| HAEMOGLOBIN S.TRAIT | 3 | < 0.1% | Sickle-cell trait guidance |
| HAEMOGLOBIN C.TRAIT | 2 | < 0.1% | Hemoglobinopathy advice |
| TOTAL HB% ELECTROPHORESIS TEST PERFORMED | 7,249 | 100% | 100% Free Diagnostics |
Every transfusion, diagnostic test, and counseling session is provided 100% free of cost to impoverished families across Sindh. Your donation and blood support saves lives every single day.